Development of a prospective data registry system for non-muscle-invasive bladder cancer patients incorporated in the electronic patient file system

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dc.contributor.authorAkand, Murat.
dc.contributor.authorMuilwijk, Tim.
dc.contributor.authorCornelissen, Jan.
dc.contributor.authorVan Bruwaene, Siska.
dc.contributor.authorVander Eeckt, Kathy.
dc.contributor.authorBaekelandt, Frederic.
dc.contributor.authorMattelaer, Pieter.
dc.contributor.authorVan Reusel, Raf.
dc.contributor.authorVan Cleynenbreugel, Ben.
dc.contributor.authorJoniau, Steven.
dc.contributor.authorVan Der Aa, Frank.
dc.date.accessioned2020-03-26T20:13:23Z
dc.date.available2020-03-26T20:13:23Z
dc.date.issued2019
dc.departmentSelçuk Üniversitesi, Tıp Fakültesi, Cerrahi Tıp Bilimleri Bölümüen_US
dc.description.abstractPurpose: To develop a prospective non-muscle-invasive bladder cancer (NMIBC) data registry by generating NMIBC-specific electronic case report forms (eCRFs) in our institution's electronic patient file system, and to report on the development and implementation of a prospective multicentric registry. Methods: Templates for data collection, including clinical outcome parameters and quality indicators, were developed in InfoPath (TM) as an eCRF and were incorporated in our hospital's electronic patient file system. Quality parameters for managing NMIBC patients that were identified by comprehensive literature review were included in the eCRFs. Three separate eCRFs were developed for the management of NMIBC patients: surgery report, bladder instillation form, and multidisciplinary team form. Results: In August 2013, we started a Flemish prospective clinical and pathological data registry for all patients undergoing transurethral resection of bladder tumor (TURBT) for NMIBC in four participating hospitals, three of which continued using this to date. Three more hospitals started enrolling in 2017, 2018, and 2019, respectively. Written reports of the registered clinical actions are automatically generated within the electronic medical file. When urologists complete these eCRFs, an automated ready-to-send letter to the general practitioner is generated. Up till May 2019, 2,756 TURBTs in 2,419 patients are included in the dataset. Currently, we are recruiting over 600 TURBTs every year. Conclusions: Easy-to-use eCRFs were developed and included in the electronic patient file system. This registration tool was implemented in 7 hospitals, 6 of which are still using it today. The register harvests important clinical data, while performing routine clinical practice. The data will be used to analyze real-life data of NMIBC patients, to challenge the existing guidelines, to create novel risk stratification tools, and to develop, monitor and validate quality parameters for NMIBC management.en_US
dc.identifier.citationAkand, M., Muilwijk, T., Cornelissen, J., Van Bruwaene, S., Vander Eeckt, K., Baekelandt, F., Mattelaer, P., Van Reusel, R., Van Cleynenbreugel, B., Joniau, S., Van Der Aa, F. (2019). Development of a Prospective Data Registry System for Non-Muscle-Invasive Bladder Cancer Patients Incorporated in the Electronic Patient File System. Frontiers in Oncology, 9, 1402.
dc.identifier.doi10.3389/fonc.2019.01402en_US
dc.identifier.issn2234-943Xen_US
dc.identifier.pmid31921659en_US
dc.identifier.scopusqualityQ2en_US
dc.identifier.urihttps://dx.doi.org/10.3389/fonc.2019.01402
dc.identifier.urihttps://hdl.handle.net/20.500.12395/37684
dc.identifier.volume9en_US
dc.identifier.wosWOS:000504278000001en_US
dc.identifier.wosqualityQ2en_US
dc.indekslendigikaynakWeb of Scienceen_US
dc.indekslendigikaynakScopusen_US
dc.indekslendigikaynakPubMeden_US
dc.institutionauthorAkand, Murat.
dc.language.isoenen_US
dc.publisherFRONTIERS MEDIA SAen_US
dc.relation.ispartofFRONTIERS IN ONCOLOGYen_US
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.rightsinfo:eu-repo/semantics/openAccessen_US
dc.selcuk20240510_oaigen_US
dc.subjectbladder canceren_US
dc.subjecttransurethral resection of bladder tumoren_US
dc.subjectdatabaseen_US
dc.subjectregistryen_US
dc.subjectpatient flowen_US
dc.titleDevelopment of a prospective data registry system for non-muscle-invasive bladder cancer patients incorporated in the electronic patient file systemen_US
dc.typeArticleen_US

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